T1D Advocate for change

T1D Advocate for change Advocacy to change "what is" Into "what should be". A helping hand from someone who understands life with Type 1 diabetes..

28/05/2026

‼️T1D Community Support Request‼️

In the spirit of sharing is caring, I'm seeking assistance for a community member's friend facing a medical emergency. Having never flown overseas before, they left their Omnipod at security and had gone without insulin since 3am AEST.

Could anyone in Bali provide temporary assistance with a spare Omnipod5 or 2?

**UPDATE 3**: They now has long acting but is allergic to it 💉🥹

**UPDATE 2**: Potential supplies have been identified; however, we are now looking for someone traveling from Brisbane Airport to Bali who could transport these items. If you or someone you know might be able to help, please respond. 📦✈️

**UPDATE**: In the interim, the individual has acquired cc/ml syringes for microdosing Fiasp. 💉

27/05/2026

Australia has approved a revolutionary treatment that delays the onset of Type 1 diabetes (T1D) for use in the country. 🇦🇺 Individuals aged 8 and older in the disease's early stages are eligible, but ONLY via compassionate access. Those advocating for the treatment, like myself, request its listing on the Pharmaceutical scheme.

Type1Screen
Services Australia
Mark Butler MP

27/05/2026

⚠️⚠️Important Safety Notice: Recall of Selected Omnipod® 5 and Omnipod DASH® Pods

Request Replacement Pods Please complete the form below so we can quickly arrange the return and replacement of any unused affected Pods. To check if your Pods are affected visit the Pod Lot Checker. For more details, please visit the Field Safety Corrective Action page or if you would like addition...

Important Safety Notice: Recall of Selected Omnipod® 5 and Omnipod DASH® Pods
27/05/2026

Important Safety Notice: Recall of Selected Omnipod® 5 and Omnipod DASH® Pods

Insulet has issued a critical recall for specific lots of Omnipod 5 and Omnipod DASH Pods following identification of a manufacturing issue. Learn more here.

Listening to Mark Butler MP on the ABC News talking about how the government expanded bulk-billing access for adults wit...
27/05/2026

Listening to Mark Butler MP on the ABC News talking about how the government expanded bulk-billing access for adults without concession or healthcare cards.

If the government can expand bulk-billing access for adults without concession or healthcare cards, why can't similar support be provided for ALL Australians living with Type 1 Diabetes? Type 1 Diabetes is a lifelong condition requiring constant management and essential diabetes technology such as CGMs, insulin pumps, and consumables, yet many adults without concession cards continue to face significant out-of-pocket costs and gap payments for this medically necessary care. People living with Type 1 Diabetes should not be financially disadvantaged for needing life-sustaining technology simply because they do not hold a concession card.

Do YOU Agree? 👍🩵

NEW MEDICATION FOR TYPE 1 DIABETES Thank you Type1Screen 🩸Prof. JOHN WENTWORTH ENDOCRINOLOGIST
27/05/2026

NEW MEDICATION FOR TYPE 1 DIABETES Thank you Type1Screen 🩸
Prof. JOHN WENTWORTH ENDOCRINOLOGIST

There's new hope this morning for diabetes patients, with a life-ch...

27/05/2026

✈️ Thank you, Melbourne Airport, for supporting travelers living with Type 1 Diabetes 🩵. I would like to sincerely thank the aviation representatives, management, and screening teams at Melbourne Airport commitment to improving the travel experience for people living with diabetes of all types, especially those who use diabetes technology. For years, many families and individuals living with Type 1 diabetes have experienced significant anxiety navigating airport security with insulin pumps, continuous glucose monitors (CGMs), and other medical devices.

Change does not happen overnight, and the improvements now being seen are the result of ongoing conversations, listening, and a genuine willingness to learn. Hearing recent feedback from travelers about respectful interactions, dedicated assistance lanes, improved understanding from staff, and smoother screening experiences is incredibly encouraging. These changes may seem small to some, but for people living with Type 1 diabetes, they can make an enormous difference to confidence, dignity, and reducing travel-related stress. Thank you to everyone behind the scenes who has taken the time to better understand diabetes technology and work towards more consistent and supportive screening procedures. Your efforts are being noticed and deeply appreciated by the whole diabetes community. 💙 Join me in thanking Melbourne Airport.

Sanofi Australia & New Zealand great news about Tzield approval in Australia 🇦🇺
27/05/2026

Sanofi Australia & New Zealand great news about Tzield approval in Australia 🇦🇺

A new therapy, Tzield® (teplizumab) is now registered in Australia for those with an early, pre-symptomatic stage of .

This immunotherapy is indicated to delay the onset of Stage 3 type 1 diabetes mellitus (T1D) in adult and paediatric patients aged 8 years and older with Stage 2 type 1 diabetes mellitus.

Tzield® (teplizumab) is not yet available on the PBS.

All medicines have side effects. The most frequently observed adverse events in patients receiving Tzield® include reductions in certain white blood cells and rash. Bacterial and viral infections, including cases of viral reactivation have been reported with Tzield®.

For more information about the medicine, including additional safety considerations, please see the Consumer Medicine Information > http://spkl.io/618876JOY

With permission from one of my followers. Good morning DebI was hoping you would see it as I believe we all have you to ...
26/05/2026

With permission from one of my followers.

Good morning Deb

I was hoping you would see it as I believe we all have you to thank for it getting to this stage 😊

Yes, you can share it. I don't mind if my name is there or not.

Thank you 🤗😊

I just want to give a heads up about my recent airport experience.

I'm T1 and so is my eldest daughter. I live in Hobart and travelled to Melbourne for the weekend without my kids.

Hobart airport has changed so much since I was there 2 years ago. They now have a dedicated assistance lane regarding the sunflower lanyard. I went through there, got waved through, said I can't go through the body scanner as I'm a T1 diabetic. They said no problem, we're just assisting someone else and won't be long (they were patting down a couple of people in wheelchairs). I got pat down, pump swabbed and I was on my way.

At Melbourne Airport today, they also had a 'staff and assistance' dedicated lane. Again, said I can't go through the body scanner and it was no problem. Only took a minute and I was pat down, pump swabbed and on my way. When I was putting my shoes back on, the manager came over to me and said new procedures have just been put into place where we won't need to take our shoes off anymore to put through the x-ray machine. I said that would be helpful as it's such a pain trying to take them off and put them back on while standing up. I also told him I have a bit of PTSD about Melbourne airport and coming through security. I said today is the absolute best and well done on all the changes made. He said we're trying to make all the airports the same way.

I was anxious and stressing so hard about the airports as it's always been so horrible. I was really, really pleasantly surprised and quite frankly overjoyed at them. Nobody even asked to see my drs letter or medtronic printouts I'd prepared! Ever so thankful for the lobbying to get airports the training needed for diabetics to just get through security ❤️💙

⚠️⚠️ DEXCOM G7 RECALL ⚠️⚠️Thanks for the heads up Therapeutic Goods Administration - TGA AA-Med Pty Ltd is recalling two...
26/05/2026

⚠️⚠️ DEXCOM G7 RECALL ⚠️⚠️
Thanks for the heads up Therapeutic Goods Administration - TGA

AA-Med Pty Ltd is recalling two lots of Dexcom G7 sensors. These lots were identified for disposal and destruction in the USA due to incomplete sterilisation and deployment failure during testing. The devices from both lots were stolen during the disposal process and sold to third parties via unauthorised supply channels

⚠️ As the supply channels for these lots cannot be established, the risk of some devices reaching the Australian market cannot be excluded. This problem only affects the lot numbers listed above; no other lots are impacted. ⚠️

AA-Med Pty Ltd is recalling two lots of Dexcom G7 sensors. These lots were identified for disposal and destruction in the USA due to incomplete sterilisation and deployment failure during testing.

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