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Rare Connection I have a rare condition called Homocystinuria. I am decided to change the focus of my podcast to incorporate all rare conditions. I do not sell anything.

This is a volunteer thing.

29/05/2026

I started another page on my other account. This one was created when that account got hacked. Follow me at Rare Connection podcast. I will likely be shutting this account down.

https://www.youtube.com/watch?v=gcsXkNuUJC4
17/04/2024

https://www.youtube.com/watch?v=gcsXkNuUJC4

In this episode of Rare Connection I will be Talking with former Special Education teacher and Yoga instructor about her experiences with psoriatic Arthritis...

17/04/2024

Join me as I talk with Kevin a patient who died twice from Calciphylaxis and was brought back to life to tell about it. His story was featured in 45 UK nati...

17/04/2024

Formerly  Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act.   Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medica...

10/04/2024

This video is a live podcast I do on YouTube asi can find guest.it is on rare diseases if you have a rare diseaseandwojld like to e on the podcast you can c...

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