Malaysia Lysosomal Diseases Association

21/03/2026

Wishing our Muslim friends_SELAMAT HARI RAYA AIDILFITRI!

Hereby we are sending the warmest and most joyous wishes to you and your family for a truly blessed & happy Aidilfitri.

May this Syawal be filled with the warmth of family, the laughter of friends, and the triumph of the human spirit.

And ​we hope this festival of forgiveness is filled with delicious food, wonderful reunions, and precious memories.

Maaf Zahir & Batin.

From board members of MLDA

28/02/2026

On 4 February 2026, Malaysia marked National Rare Disease Day in alignment with World Rare Disease Day, uniting stakeholders nationwide in a powerful demonst...

28/02/2026

We are indeed thankful to Pharm-D Health Science for uploading the 2026 World Rare Diseases Day event photos into the Jarang CSR website.
🔗 https://www.jarang.pharmdhs.com/ #!/eventhighlights

1️⃣ Patient Story Sharing Session
https://www.jarang.pharmdhs.com/?album=1316&album_ses=1 -album-gallery-1

2️⃣ Opening Ceremony
https://www.jarang.pharmdhs.com/?album=1315&album_ses=1 -album-gallery-1

3️⃣ Malaysia Book of Records Activity
https://www.jarang.pharmdhs.com/?album=1208&album_ses=1 -album-gallery-1

4️⃣ Event Moments & Partner Recognition
https://www.jarang.pharmdhs.com/?album=1207&album_ses=1 -album-gallery-1

5️⃣ Booth Exhibition
https://www.jarang.pharmdhs.com/?album=1147&album_ses=1 -album-gallery-1

Our slogan, Jarang Tapi Kita Bersama (Rare But We Are Together), captures the essence of unity, hope, and collective support for individuals and families impacted by rare diseases. It underscores the strength of community and the shared responsibility of humanity. Despite the rarity of these conditi...

28/02/2026

Hi all, in conjunction of World Rare Disease Day 2026, I am sharing a song dedicated to every child living with a rare disease, our bintang bernama harapan, and to every parent who keeps going in silence.

More importantly, let’s choose inclusion, speak with kindness, and stop judging what we don’t understand.

Untuk semua yang berjuang dalam senyap, kamu terlihat.

16/02/2026

Happy Chinese New Year to everyone who celebrates Chinese New Year. Wishing everyone be blessed with abundance of health,wealth and peace in the coming horse year.

15/02/2026

Yesterday, President of MLDA Ir Lee got a call he never expected. Not to fix something, not to drive someone, but to walk the runway! A huge thank you to president of Malaysian Rare Disorders Society (Persatuan Penyakit Jarang Jumpa Malaysia) Pn Nadiah Hanim Abdul Latif and the MRDS team for roping Ir Lee into this.

It was an honor to stand alongside two other amazing dads—three races, one purpose: representing the women in their lives. They walked to support Adaptive Fashion, to celebrate World Rare Disease Day, and to show their daughters that they will always be in their corner.

To model dad Azhar Talib, it was a pleasure sharing the ramp with him. And to all the RD Warriors, mamas, siblings, and parents he met backstage—you all are the real stars. Your strength is incredible.

Shout out to L'Oreal for the fit and the makeup team for making us presentable!

What an experience. 💪

04/02/2026

https://www.facebook.com/share/1CK86TYJf3/

Thank you Datuk Seri Dr Dzulkifly Ahmad, Minister of Health for launching the first national policy for Rare Diseases(RD). This policy bring hope to the RD community

04/02/2026

Celebration of World Rare Diseases Day at Hospital Tunku Azizah Kuala Lumpur today.

Heart felt gratitude for all the sponsors,organizing committees and volunteers for making this event a successful one.

Thank you for all visitors who visited our booth and learn more about rare diseases.

31/12/2025

Goodbye 2025
Welcome 2026

Sending year end
Blessings and Joy
by 2 charming Angels ,
Rachel and Kelly

26/11/2025

We are really grateful to be invited by PharmNotts Society of University of Nottingham Malaysia to raise awareness and provide valuable insights on rare diseases during Rare Diseases Week 2025.

16/10/2025

Congratulations Mr Sathyan⁩ ! First Malaysia Finisher in Peninsular Divide, thank you so much for carrying Ride with Hope campaign message along this journey , helping us in fund raising through out this entire journey, rest well and enjoy your long holiday in conjunction with Deepavali celebrations 🥰

12/10/2025

🎉 SEND-OFF ALERT! 🎉

A fantastic start to the day as Ir Lee Yee Seng, President of the Malaysia Lysosomal Diseases Association (MLDA), sending off our Ride With Hope Ambassador Mr Sathyan for the epic Peninsular Divide 2025!

We are wishing him all the best and a safe ride on this incredible journey. Good luck!

Family & Friends, you can track the race in REAL-TIME! 🗺️

Track our ambassador's progress live as he takes on Malaysia's toughest terrains. Just follow these steps:

1. Visit http://www.madcap.cc
2. Search for Cap No. 04
3. Add him to your favourites!

💡 Pro Tip: For the best experience, download the "MadCap" mobile app from the iOS App Store or Google Play Store.

This ride is powered by purpose! 🚴💨

Peninsular Divide 2025 is proud to partner with MLDA for our "Ride With Hope – Every KM Counts, Every Life Matters" campaign. We're not just chasing finish lines; we're chasing hope, raising awareness and funds for those affected by lysosomal storage diseases.

Let’s cheer him on every kilometer of the way!